APL, Information and SupportInspired by Anita’s Journey through Acute Promyelocytic Leukemia

Hello everyone. My 21-month-old nephew (adjusted age 19 months) was diagnosed with APL on Saturday. I know that you will all understand our shock and grief. Here’s my question: he is at the Boston Children’s Hospital. They say they very rarely see such a young child with APL. Are there other people here with experience in this? Since I live in China, where ATRA was discovered, I am trying to contact Dr Wang Zhenyi at the Ruijin Hospital in Shanghai, to ask for a consultation on behalf of my brother’s family, since APL apparently is commoner here in China than in the West, and the hope is that he will have experience with treating such young children. Does anyone know him or have a contact for him? So far I have not been able to get through to the hospital. They have a terrible phone manner and no-one in hematology is even picking up. Thanks everyone. Didi/Beijing.